Nei tichida imwe Europe, uye nyanzvi, mune zvehutano? Nyora ikozvino: CAN.HEAL Chiitiko, Roma, 26-27 Kubvumbi

Rimwe zuva uye imwezve EAPM yekutumira yekunakidzwa nekusarudzwa ... uye chiyeuchidzo maererano nekunyoreswa kwechiitiko chedu cheCAN.HEAL chiri kuitika muRoma chiri kurongwa neECPC neEAPM, anonyora European Alliance for Personalized Medicine (EAPM) Executive Director, Denis Horgan.

Asi izvi zvisati zvaitika, heino mhere-mhere uye chinongedzo kune yedu ichangoburwa yedzidzo chinyorwa chinokurukura nezveEuropean Health Data Space iyo ine kodzero '.Makore kubva mambakwedza ekiriniki, diagnostic uye biological data: kukurumidza kusimudzira, kuendesa uye kutora kwemishonga yakasarudzika.'.

Chinyorwa chinopokana kuti kunyangwe data rehutano riri kunakidzwa nekuzivikanwa kutsva nevimbiso dzakasimba dzeshanduko mukutarisira - asi mapundu akakosha anofanirwa kuzadzwa nekuchimbidza pamberi pezvipikirwa zvisati zvaitika. Pamusoro pazvose, zvinodikanwa kuunza kunyatsojeka kunhaurirano dzine musoro pamusoro pegwaro rehutano riri kutsvaira muEurope yose, richizadzisa rhetoric nekuziva kwakajeka kwemakanika ekushandisa data rehutano kuwedzera hutano hwehutano, tsvakiridzo, hunyanzvi uye kugadzira mutemo nekutsinhana kwakachengeteka uye kwakachengeteka. , shandisa uye shandisa zvakare. Chishuvo chacho chingave chakanaka muEU mharidzo yechikumbiro chayo chekugadzirisa dhata rehutano se "quantum leap" iyo "inosunungura kugona kwakazara" kwedata, asi kuchengetedza chinangwa ichocho kuri kutoratidza dambudziko kupfuura kutaura. yechiratidzo.

Kugadzira mitemo kunoda kuchinjirwa kune mamwe magadzirirwo anoshanda, kuongororwa kwakasimba kwezviri pasi pechokwadi, zvakajeka zvinangwa uye maitiro. Kutungamira kwe data yega yega kwakabuda kubva mukuvandudzwa kwehunyanzvi. 13 GDPR 679/16 "Mutemo weEurope pamusoro pekuchengetedzwa kwemashoko evanhu" . Saka nzira dzinoshanda dzinofanirwa kubvumirana kupa zvakavanzika pasina kukanganisa kushandiswa kunogamuchirwa. Zvekare, kukunda matambudziko mumhinduro yekushandiswa kwedata nekuita muhutano, nzvimbo dzinoongorora genomic data uye kudzorera ruzivo kune vanoendesa varapi dzinogona kupa nzira yakakosha yekufambisa ruzivo zvakare kumurwere. Hurongwa hwekutonga kweiyi ndima inokurumidza kufambira mberi ichafanirwa kuvakwa zvekuti inogona kuchinjika kuti ipindure kune hutsva, uye kudzidziswa kunoda muchikamu chose kuchafanirwa kuverengerwa.

Vagadziri vemitemo vanofanirwa kuziva kukura kwezvinetswa uye zvidzidzo zvakakasharara kubva kunyaya dzichangoburwa mukuronga kugadzira mitemo yehutano. Hurongwa hwakakwana hunofanirwa kufanoona nezvehuwandu hwematambudziko achasangana nawo apo mutemo unotanga kushanda - uye sezvo tekinoroji iri kuramba ichishanduka. Mafambiro ezvematongerwo enyika anofanirwawo kutora nhoroondo yezvakanyanya kushanda zvehupfumi zvekuchinja kunenge kuri kutariswa: mari ichadikanwa kusangana nemutengo usingadzivisiki wekugadzira masisitimu anokwanisa kuita kururamisira kuhupfumi hwe data inogona kuunganidzwa kuvandudza kuchengetedzwa kwemurwere.

Kufunga kwakawedzera kunokwanisa kudzivirira chirongwa ichi kuwira mumibairo isingatarisirwe - izvo zvakatoitika kune mumwe mutemo uri pakati peEU hutano mutemo wandine chokwadi kuti uchakurukurwa muchiitiko cheRoman chine musoro unoti 'Kuderedza Kusawirirana MuEuropean Union'.

Ndapota tora pano kunyoresa chiitiko uye kuona ajenda, ndapota tinya pano.

Migwagwa yese inotungamira kuRome kudzikisa kusaenzana kwegomarara, 26-27 Kubvumbi?

Ichi chiitiko muRoma chinoitirwa kupa mubatanidzwa wehumbowo hwekugashira hutsva muhutano hwehutano hweEurope, uye kupa mamwe mazano pamusoro pekuchinja kunodiwa kuti izvi zviitike nekukurumidza.

Chiitiko ichi chichakwevera pabasa kubva kuEU mumutemo wegomarara kweanopfuura makumi maviri emakore emapiyona mune sainzi nemushonga, uye yevanonyanya kuona vezvematongerwo enyika nevakuru vakuru.

Pamwoyo payo mubvunzo: "Ndeipi hurongwa hwekuvimbisa kuti hutano hutsva hunopinda muhutano hwehutano hweEU nekukurumidza?"

Ichatsanangura mamiriro ekuumbwa kwemitemo muEurope, ine ziso rekugara richichinjika kweEU pachayo munhengo yayo uye zvinonetsa, sezvo ichipindura kumanikidzwa kwemukati uye kune inoshanduka nyika yakaitenderedza. Zvinoita nyaya yekuti shanduko iyi isingaperi inogona, kana yakasvikirwa nehungwaru, kuve mukana wekuunza kufunga kutsva kunoenderana neramangwana kupfuura zvekare. 

Ichaongorora hukama hweEU nehutsva uye horizons itsva yakavhurwa neIT, Big Data, uye kubudirira mune zvehupenyu sainzi. Zvinoratidza kuti pane kukura kuri kuziva kuti chero chimwe chinhu icho EU inoda kuzadzisa, nzira yekukura yekuvandudza inokosha.

Ichatarisa pamamiriro ehutano hwehutano, kuongorora kutsvaga kunonoka uye kusati kwakwana kwegwaro rehutano rakabatana muEuropean Union umo mamiriro enyika anosiyana zvakanyanya, uye, zvakanyanya, apo iro bumbiro reEU pacharo rinopa matambudziko mukuyedza kumisa. common policy. Ichaita kuti nyaya yacho, zvisinei, ye 30,000 tsoka yekuona iyo inoita kuti zvive pachena zvakanakira zvakanakira kushanda pamwechete kutora mukana wekuvandudza.

Ichasimbisa kutarisisa kwayo pane kugona kwemishonga yakasarudzika, pharmacogenomics uye data hombe muhutano hwehutano. Inotsanangura kufambira mberi kwakaitwa nemapurojekiti akasiyana eEBCP ayo achaendesa mberi European genomics, uye basa rinonakidza riri kuitwa mukondinendi yese. Uye inoongorora zvipingamupinyi zvekushandisa izvi zvinogoneka, uye inosimbisa kukurumidza kwechiito mune iri kuwedzera kuyambuka muganhu mamiriro ekutsvaga nekutarisira. 

Ichapa kunyanya kutarisisa kune basa rematunhu mukuunza hunyanzvi mukutonga kwehutano, nekungobata-bata EU hutongi, muhurongwa hwakavakirwa pakuvimbika kwakakosha kune ese hutano masisitimu.

Tinotarisira kukuona muRoma. 

Ndapota tora pano kunyoresa chiitiko uye kuona ajenda ndapota tinya pano. Sezvambotaurwa, chiitiko ichi chakarongwa neEuropean Cancer Patient Coalition uye EAPM. 

Uye kuona chinyorwa chedu, tapota tinya pano: 'Makore kubva mambakwedza ekiriniki, diagnostic uye biological data: kukurumidza kusimudzira, kuendesa uye kutora kwemishonga yakasarudzika.'.

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