Mafungiro: Inguva yeEU yekuisa pan-European kutarisa nezvehutano

Muzvinafundo Angela Brand (inoratidzwa pasi apa), mutungamiriri wekutanga uye purofesa akazara weInstitute for Public Health Genomics paMaastricht University

Kana zvasvika kunhandare yehutano, Europe yakakamukana zvakanyanya: nhengo dzayo makumi maviri nesere dzine zviyero zvakasiyana, mazinga akasiyana ekuwana uye mari masisitimu asina hukama kune imwe.

Izvi zvinokonzeresa matambudziko mazhinji, kunyanya kumurwere, uye zvinokanganisa, semuenzaniso, kugona kuunganidza nekugovana data nemazvo uye zvinobudirira, pamwe nekukonzera matambudziko neanotariswa miedzo yekiriniki, hutano hwekuyambuka muganhu nezvimwe zvakawanda.

Zvisinei nekusave nekongiri yesimba rinobata hutano, EU yanga iine mutemo kwemakumi maviri emakore uye inofanirwa kusimudzira izvi uye kuzviita izvozvi. Iine mamirioni mazana mashanu vagari uye huwandu hwevanhu vachembera, Europe yakatarisana nedambudziko rakakura maererano nevarwere varipo uye vachauya. Zviri pachena kuti inguva yechiito.

Zvisinei, chiito ichi chichabva kupi? Kana masimba-ari muEurope ari kuvandudza kurongeka kwete chete pakati penhengo dzenhengo asiwo pakati pematunhu emunyika mune dzimwe nguva, saka EU inoda kukudza mapendekete ayo uye kutora mutoro webasa rakasimba kwazvo mukutarisira hutano. .

Zvematongerwo enyika zvese zvinogona kunge zviri zvemuno, sekutaura kwakaita Tipp O 'Neill, asi pane basa rinofanira kuitwa kuitira kuti izvi zviitike mukutarisirwa kwehutano. 'Venzvimbo', nemamwe mazwi vagari uye kunyanya varwere vemazuva ano uye mangwana, vanofanirwa kuona mitemo inoshanda inogona kushandiswa munharaunda.

Sezvinobvumwa, izvi zvakaoma nekuda kwemaitiro eEU. Mubatanidzwa unowanzo kupomerwa mhosva yekushaikwa kwevarwere kuwana marapirwo akanakisa nemishonga iripo pamwe nekushaikwa kwekudyara mukutsvaga. Kumwe kushoropodza uku kunoruramiswa asi nyaya huru pano ndeyekuti EU inoda kutsigirwa kuitira kuti pave nekubatana kwechisikigo uye kurongeka kunofanirwa kuitika pakati penhengo nematunhu asi izvo zvisiri kuitika.

Vamwe vagari vanofunga kuti EU isangano riri kure uye rakabviswa kwavari uye nehupenyu hwavo hwezuva nezuva. Takanzwa zvakawanda nezve 'democratic deficit' asi manzwiro iwayo mazhinji anobva mukuoma kunzwisisa kweEU uye maonerwo emurume ari munzira nezvazvo. Zvematongerwo enyika zve'Local level' hazvishande padanho reEU sezvo paine musiyano mukuru pakati pekusarudza mumiriri wenzvimbo uyo anobva aenda kukanzuru kana kuparamende uye, netarisiro anoita madiro evavhoti, uye MEP asingakwanisi kugadzira bumbiro remitemo. mutemo asi kungougadzirisa, mazana, kana asiri zviuru, zvemamaira kure nedunhu rake.

Zvichakadaro, mutemo uri kutongwa neEuropean Council (inoumbwa nevakuru venyika nehurumende) pamwe chete neEuropean Commission, iyo yekupedzisira isiri kusarudzwa zvakananga (kunyangwe makomisheni ega ega achiiswa pamberi nehurumende yeNyika dzeMarudzi). . Dambudziko neizvi rakajeka - vagari havana ruzivo rwekuti ndiani anovamiririra. Uye zvakadaro EU ine kugona kwemutemo munzvimbo dzakawanda kuitira kugara zvakanaka kwevagari ava.

Kubva pamaonero emurwere, vakatonyanya vese vane chekuita nezvehutano vanoti vanovamiririra uye izvi zvinounza dambudziko kune vanogadzira mitemo, vanoita zvemitemo uye vanoita sarudzo mupfungwa yekuti vanoputirwa nemaonero akasiyana uye, kazhinji, havagone kuona huni dzemiti. Kana munhu wese anofarira ari kushevedzera 'Ndiri Spartacus!' kana kuti 'Ndinomiririra maonero nezvinodiwa zvemurwere', zvino izvi zvinotungamirira mukuvhiringidzika uye, mune dzimwe nguva, kushayikwa kwekuita kunowanzopomerwa kuEU. Icho chiri nyore chinangwa mune izvi.

Pfungwa yemhando yequagmire iyo EU inopinda mairi inogona kupihwa nenyaya yekuti Clinical Trials Directive yakatora makore gumi kuti idzokorore uye iyo Data Dziviriro yekudzora nhanho yakatungamira kune anopfuura zviuru zvina zvigadziriso. Hongu, iwe unoverenga izvo nenzira kwayo - 4,000!

Zvakanaka kutaura kuti kazhinji kumiririra, zvishuwo uye zvinodiwa zvinoiswa pamberi peEU pamberi uye panguva yekumisikidzwa kwemutemo zvinowanzovhiringidza uye, mune dzimwe nguva, zvinopokana. Saka pamwe hatifanire kukurumidza kunongedza chigunwe kune imwe nzvimbo yatora makore makumi matanhatu chete kusvika pairi iko zvino toshevedzera kuti 'Ndinopomera…!' kubva pamusoro peBerlaymont.

Ehe, EU inoda kuita zvakawanda kutarisira mamirioni evagari nekugadzira nharaunda umo nyika dzenhengo nevese vane chekuita vanogona kushandirapamwe kugadzira hutano huri nani mubloc yese. Ehe, inoda kubhadhara uye kukurudzira kutsvagisa nekusimudzira uku ichipa zvirinani kukurudzira kuindasitiri. Uye, hongu, zvinotoda kunzwisisa kuti ndiani, chaizvo, ari kumiririra murwere.

Kutaura chokwadi, nzira chete iyo Komisheni neMEPs vanogona kunyatsonzwisisa nyaya dzese ndeyekunyatsoteerera kune boka rine vatori vechikamu mune chero nhandare pane kupindura akawanda 'kugogodza pamusuwo' kubva kune akawanda, kazhinji anopokana, mapato.

Zvirinani izvi zviri kuitika munharaunda iri kusimukira yemishonga yemunhu. The European Alliance for Personalized Medicine (EAPM) ichabata zvayo musangano wepagore pa9-10 Gunyana muBrussels uye kuunza pamwechete vese vane chekuita - varwere, varapi, vaongorori, vadzidzi, vashandi veindasitiri, vanobatana nenhengo dzehurumende, vanogadzira mitemo pamwe neMEP itsva - uye yakarongwa kutangira makore mashanu eEuropean Commission iri kuuya.

Nemushandirapamwe wayo unoramba uripo weSTEPs (Specialised Treatment for Europe's Patients), uye kumisikidzwa kweMEPs 'STEPs Interest Group, EAPM yakagadzira foramu yenguva dzose umo vese vane chekuita vanogona kunzwa izvo varwere vanoda uye zvavanoda, uye vanogadzira mitemo vanogona kubva vanzwa. inzwi rimwe pachinzvimbo chokutaura kwavazhinji. Iyi ndiyo nzira chete yekupa meseji imwechete, yakajeka kwazvo.

Pasina mubvunzo izvi ndizvo zvinodiwa kushongedza vezvematongerwo enyika neKomisheni nemidziyo yakakodzera yekuita basa rakakura rekuvaka ane hutano, uye nekudaro akapfuma, Europe yechizvarwa chino uye icho chinotevera.

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